Ethan had his Dr. appointment today with Dr. Horner for his hyperphe. The nutritionist said that she doesn't want us to give Ethan more than 40g of protein. Matt & I have decided that we don't want to give him more than 30g at this time since Ethan had between 35g-40g & his levels went up. She did give me a chart for phe levels in different food. For instance there is 50g of phe for every 1g of protein in meats dairy, & grains. But there are 26g of phe for every 1g of protein in fruits. There are 33g of phe for every 1g of protein in vegetables. But she did not give us a limit on the amount of phe that Ethan can have. To make the calculation easier we have set the limit to 30g of protein. The Dr. gave us a script for Zolfran. With the cold & flu season coming up he wants to be on the safe side. If Ethan were to get sick like he did back around Easter we are to give him this med to stop the vomiting. In the event that Ethan were to get some kid of stomach bug we need to get the vomiting to stop quickly. In people who have PKU & hyperphe when they aren't getting the nutrition that they need their body will start to break down their muscles which will cause the phe levels to rise. I will not be getting the script filled until that time comes.
Monday, August 31, 2009
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Monday, August 24, 2009
Ethan was such a busy boy today. This morning he decided he didn't want to get up till 10:30 which has been happening lately since his molars started breaking through. It's not uncommon for him to sleep a little extra when he has new teeth coming in. I got his breakfast all fixed & right as I sat down to feed him Grandpa Frank came over completely unexpectedly. It was a nice surprise. Ethan got to show off his skills of climbing, running, & just being plain cute. We went out for lunch where Ethan showed off how well he doesn't sit. He was not happy to sit at the table he wanted to run all over the place. I took Ethan out after his nap this afternoon to Toys R Us to get a few more things to finish baby proofing the house. All we needed was a bath mat for the tub & a cover for the fawcett. I also couldn't resist getting this really cute stuffed blue polar bear. He is starting to get into the "security blanket" stage except his isn't a blanket it's a stuffed lamb named Lambie. The polar bear is just like the lamb. Today Ethan was all about his Lambie. He wouldn't leave the house this afternoon w/o it, then we had to take it into the store. When I gave him the polar bear he refused to give it to the cashier. He has been carrying it all over the house since we got home. There are pictures to come soon.
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Saturday, August 22, 2009
Tough as nails
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Thursday, August 20, 2009
Baby Proofing
Oh the baby proofing never seems to end! Just when we think we have the house totally baby proofed (minus the basement that is still under construction) Ethan finds more things that we need to Ethan Proof. Last night it was the bottom 2 drawers on the entertainment center. He opened the drawers last night & got into the DVD's. We got them picked up but he went right back to the drawers. We told him no & he smashed his fingers closing the drawer. Then after we got him calmed down from that he went right back & before we could move he smashed his finger a second time. You would think that he would learn from the 1st time but nope. So to prevent it from happening again we put duct tape on the drawers to keep them closed just until I could get something for them. We do have special locks but they won't work on those drawers. I found some straps that adhere to the outside & those are now in place. Although Ethan has already figured a way to remove them. Use them as a foot hold to climb. I don't think he realizes that they pop off if he does that. They aren't designed to support weight. We also have locks on all the drawers & lower cabinets in the kitchen. Next it will probably be locks for the lazy susan & the sliding door to the pantry. I don't want to get comfortable in thinking we now have everything Ethan Proofed b/c he will always find a way to prove us wrong.
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Wednesday, August 19, 2009
Another new look for Ethan
As Ethan's personality changes so does his blog. So it's time for a new look. Ethan has become quite a character. He's a very active little boy with a lot of energy. He reminds me of the Energizer Bunny "He keeps going & going & going...." Ethan has really been full of it this week that's for sure. On Monday he was Mr. Out-of-control. He was all about getting into the no-no's. He was obsessed about climbing onto his toy box then onto the top of the couch & trying to stand. He'd get removed from the couch but he would just go right back to the toy box. All evening he was all about unplugging the night light by the fireplace. He was all about helping me fold his laundry. I would fold it he would throw it all over the living room. He didn't take much of a nap so I was only able to get half his laundry folded. He spent time in his play yard but all he did there was scream. When 9:00 came around we were a bit relieved. But at 10 on the button he woke right up. We calmed him down got him back to sleep but again he was up at 11:45. He was finally down for the night by 12.
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Sunday, August 16, 2009
What to do with Ethan...
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Sunday, August 9, 2009
Back to normal
Tomorrow Ethan's days will back to normal. Matt goes back to work after being off for the last 11 days. What will Ethan do w/o his daddy? He's been so clingy to Matt over the last week 'n a half. He's not used to having his daddy home all day every day. I told Ethan that I've got to get back into working out. We've been busy doing things while Matt was on vacation & weather has not always been permitting that I have gotten out of sync. Depending on weather we might go biking tomorrow.
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Tuesday, August 4, 2009
Our day in the African Safari
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Saturday, August 1, 2009
Happy Birthday To My Daddy!!!
My daddy turned 30 yesterday. I got him up first thing in the morning just so we could play. I wanted to be alone. Then once mommy woke up a half hour later he opened his present from me. I signed the card my self, daddy was so pleased. We had a party for daddy later in the evening. I had a blast! I got to have cookie cake & ice cream. For his birthday daddy got some really cool toys. Something called transformers. He said it's something we can play together!! Daddy even let me stay up way past my bedtime just for his birthday. This morning we got up together & played with those transformer things. I don't really get the point of them but their really cool cause they got little parts for me to get into. Although daddy keeps taking the little parts away from me. Why does he have to ruin my fun? My daddy is on vacation all week so I can spend all day with him. How great is that?! Today I have been giving my daddy a run for his money. I have been a crab for him all day just to get him back for not being allowed to play with the small toy parts. What does he think I'm going to do with them, put them up my nose? I just want to chew them what's the harm in that? Daddy says I could choke, whatever that means. I never get to have any fun! Daddy has promised me that he & mommy are going to take me to the African Safari in a place called Port Clinton sometime this week. Oh I can't wait. I love going places with my daddy. I just love my daddy oh so much. Even though he won't let me have any fun he's the greatest!!!
Posted by Julie at 2:33 PM 0 comments