Ethan's Page

Ethan had his Dr. appointment today with Dr. Horner for his hyperphe. The nutritionist said that she doesn't want us to give Ethan more than 40g of protein. Matt & I have decided that we don't want to give him more than 30g at this time since Ethan had between 35g-40g & his levels went up. She did give me a chart for phe levels in different food. For instance there is 50g of phe for every 1g of protein in meats dairy, & grains. But there are 26g of phe for every 1g of protein in fruits. There are 33g of phe for every 1g of protein in vegetables. But she did not give us a limit on the amount of phe that Ethan can have. To make the calculation easier we have set the limit to 30g of protein. The Dr. gave us a script for Zolfran. With the cold & flu season coming up he wants to be on the safe side. If Ethan were to get sick like he did back around Easter we are to give him this med to stop the vomiting. In the event that Ethan were to get some kid of stomach bug we need to get the vomiting to stop quickly. In people who have PKU & hyperphe when they aren't getting the nutrition that they need their body will start to break down their muscles which will cause the phe levels to rise. I will not be getting the script filled until that time comes.

In other news, Matt was giving Ethan a bath tonight. While he was draining the tub Ethan decided it was the perfect time to take care of some bizness. He pooped in the tub. Matt grabbed him & put him on the potty where he finished his bizness. We gave him credit where credit is due. We gave him a gold star on his potty chart. Hopefully this is a sign that he is going to be ready to poo on the potty every day soon. That would be awesome!