10 Challenge & Kayleigh Update.

Ethan is doing great on his 10 day challenge. He will be tested on Weds. Hopefully he will not be above his usual 4.0 level. With the warmer weather coming the question is going to come up about ice cream. Right now no he can not have ice cream. I gave him a tiny taste a few weeks ago & his cheeks & chin broke out in a rash. It was the only thing he had had that day that he had never had before. So I need to talk to his dr first before he can have it again. He won't be going to see her til 6/9 for his 1 yr check up.

On the Kayleigh front things are bad. They did a 2nd EEG & it shows no brain activity. Currently she is breathing on her own they just have her on CPAP to keep her broncial tubes open. She does have moments of "awakeness" Shes not really awake though. She clenches her hands & feet like she is in pain & makes motions like she is trying to cry (the trach prevents that). They say it's just muscle spasms that the part of her brain that controls pain is no longer functioning. Adam & Aimee have made the decision to just take her home & let her live out the remainder of her days there. Her older siblings have not been allowed in the NICU since last Aug & they would like to be with their little sister. Pictures have been posted on Kayleigh's blog. She looks so peaceful. My heart broke when I saw those pictures b/c she is so beautiful. Keep this family in your thoughts & prayers they need all they can get especially now.

I have also fixed the issue with the comment section. If you want to leave a comment just click on the link "comments" & a pop up will come up with a text box in it. Follow the instructions to leave a comment. I also want to let everyone know that I will be ordering the bracelets at the end of this week. If you haven't gotten me the money just use the PayPal link in the side bar. After I put in the order I am going to remove the link. It wont be needed anymore after this week. The bracelets are just in honor or Ethan's b-day. Him turning 1 is such a big milestone. Things could have been so much worse for us we just got lucky that he was a healthy preemie.