PKU testing

We are taking Ethan today to get his blood drawn for his hyperphe. It will be next week sometime when we get the results which I will post to this blog. We are going to continue to keep doing meat every day so that if the dr says they want to do a 30 day challenge (Based off this current test results) we won't have to start it all over. Of course if the levels are high then we will have to stop giving him meat. I will keep everyone informed as to what we are doing with his diet.

This morning when Ethan got up I brushed his teeth for the very first time. We have been using a special brush for his gums to help with teething but this was the first time I used toothpaste. I bought the Orajel training toothpaste. It has no floride so it is safe to swallow. Also it doesn't foam so there is no need to spit. It is designed for infants up to 24 mos. Ethan thinks the toothbrush is edible so he chews on it. He makes mmmmm sounds at the taste from the toothpaste. It's quite cute.

There is an update on Kayleigh for those that are interested. All her test results have come back & it shows that there is no brain function in the cerebral cortex. There is full function in the brain stem which is what controls organ function, breathing, pain. However she will never learn anything. She'll never speak or crawl or anything like that. They will be taking her home as soon as she is healed from her last surgery. She can open her eyes but she looks beyond her surroundings. She moves but there is no purpose to her movements. She's really only awake to a point. It is very sad what has happened to her. Adam & Aimee will eventually make a decision as to what they will do but right now they just want the chance to take her home & give those who have not had a chance to bond with her the chance. They want family to be able to see her, hold her, lover her before they make a decision on her life. I don't blame them. 10 mos in the hospital is a long time. I would probably do the same thing.