Ethan's PKU

Deb contacted us & said that she recalculated Ethans protein intake. He took in 1300mg/day. At his last test he was taking in 1100mg/day. The fact that he is taking in more & his levels are lower in a good sign. So now what she wants us to do is to add 1/4 cup of powdered milk to his food each day. This will give him an additional 300 mg of protein in his diet. We started today, I have just been adding it to his formula. Since he takes 5oz of formula with his breakfast & lunch it works out great. 1 scoop of powdered milk to every 2 scoops of formula. He should get 3.5 scoops a day. He gets 3 sippy cups of formula each day. The rest of the day he drinks juice if he wants it. We can also just stir the powder in with his other food. We are no longer buying baby food as he's really to a point where he can eat more solid food. Until he gets all his teeth it just has to be something soft. The only baby food we are still buying is meat. It's a little easier to measure how much meat he takes that way for his tests. I'm hoping that we are going to continually see his levels get lower now that he is older. This would be great so we won't have to continue to keep track of what he is eating.

There is an update on Kayleigh. Her brain has not continued to swell it has stayed where it is at. The dr's are taking her off the med for her hypertension to switch it. She has to be weaned off. So it is looking like she will be in the NICU for another 3 weeks. Hopefully she will be home before she turns 1.

I will be getting the invitations out for Ethan's party soon. All I can say about them is they are really cute. I don't want to give away what I did it's more fun to surprise people.

Ethan is becoming quite a handful now. He is in constant motion all the time. When he's awake he is continuously on the go. He covers all areas of the room. I'm lucky if I can wrangle him long enough for a kiss & hug. He doesn't like to be held for more than 30 secs. He is also getting really good at walking while holding onto the couch or chair. He doesn't want to hold my hands & try to walk he wants to do it on his own. It won't be long now before he is completely walking by himself without the need of assistance from the furniture.