Ethan is 11 mos old today!!! Since it was such a nice day out we decided to go out to the park. We packed some things to drink & some snacks for Ethan & headed out to Wildwood. We no more than got to the expressway, when my friend Andy called wanting to see if we wanted to meet them (Heather & her husband Scott, Andy & his fiancee Jimmy) at Maumee Bay. Since we ha just left we decided to meet them. They were grilling out. So Ethan, Matt, & I had a picnic with them. We got there before them so we went for a walk & sat out in the grass for a bit. It was Ethans first time getting to crawl around in the grass. He really wasn't sure what to make of it at first. He didn't seem to happy with the feel of grass in his hands or under his legs. For lunch/dinner he had some juice that we packed for him & 1/4 of a hotdog, it was his first hotdog. He liked it.
We are continuing to give Ethan meat every day. We figured that we would continue on to do a 30 day challenge from his 10 day challenge so his next blood draw will be the 20th of this month. So far he is still only getting 1100mg of protein per day. We already know that he can tolerate that so we are going to try to give him a little more food at each meal to see if he will be able to handle more than 11oomg of protein. The thing is a few months ago he was eating his meals closer together. But now he wants to eat more in one sitting & go longer in between his meals. So we can just go from giving him 1 jar of meat a day to 1 jar per meal. He eats 2 meals ( about 20oz of food) then he gets a 8 oz bottle at night. In a typical meal he gets 4oz Formula, 7oz vegetable, 7oz fruit, 1.25oz meat. He eats about 9:30 & 4:30. We'll just give him a jar of meat with these meals. We are also going to start to give him the Gerber Graduates Lil' Entrees to help get him more into wanting solid meals.
There is not really any new news on Kayleigh. The swelling in her brain has not gotten any worse. Her parents are really pushing to get her home as soon as they can. The Dr's want to change her hypertension medication before they release her . They will be doing that tomorrow. I do hope that she is able to go home & just be with her family so she can just go peacefully. She will not recover at this point. The swelling caused further deterioration of her brain & it will probably continue until her body just can't take any more. I hope that her parents are able to get her home before this gets any worse. They deserve it. 10 mos of waiting is long enough in my book.
Here are a few new photos of Ethan taken over the past few days.
Trying to sneak a grab for Peek-a-boo
Just being plain out cute
At the park
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